New Debra Charity Shop in Old Town Marbella
by Marbella Family
Opening Party of new Butterfly Children Charity Shop in Old Town Marbella.
Date: Thursday 26th of March at 8.00 pm
Place: C/Caballeros 9, Old Town Marbella.
The Butterfly Children Charity Shops play a key role in raising awareness and much needed funds to DEBRA Spain, charity based in Marbella that supports Butterfly Children and their families all over Spain.
The mayor of Marbella, Ms. Ángeles Muñoz has been invited to the event which will include live music and tapas.
Please help us with media coverage.
For more information please contact Minerva Quijera or Ana María Ponce
(DEBRA Communications and Fundraising) at 952 816 434 / 619 505 180 /
About DEBRA Spain:
DEBRA Spain, founded in 1993, is a non profit-making organization formed to provide support and to improve the quality of life of those affected by EB. The charity works hard to provide the following: Emotional and medical support to families and carers, as well as social services professionals with information and guidance. Fully trained nurses who travel throughout Spain visiting families in their own homes. Information and advice on all aspects of the disease, coordinating with doctors and health services to ensure patients receive the correct treatment. Support for research programmes into a possible cure. Media campaigns to promote awareness and raise funds through numerous events and charity shops. A number of yearly national meetings to bring affected people together, as well as conferences for medics and other professionals. •A link to DEBRA in all other countries. Member of DEBRA INTERNATIONAL Continuous work to obtain private and public grants.
About the Butterfly Skin Condition: EB, Epidermolysis Bullosa or Butterfly Skin is an incurable, rare and terrible genetic condition that affects the skin. The skin becomes as delicate as a butterfly wing. Simply touching the surface of the skin causes severe blistering and wounds that never heal. Blistering also occurs internally (in the mouth, oesophagus, intestine, airways, urinary tracts and even the inside of the eyelids) leading to further suffering and serious health problems. EB is also becomes a disability because people suffering from this condition require intensive daily care from their relatives. They also loose the use of their hands and feet due to the extent of the blistering and the retraction of the skin in these areas. Life expectancy is unfortunately short; hence the majority of our members are children.